Delegate feedback..."Thanks for sharing your story". "Inspirational."
Earlier this month I was invited to speak at The Diversity Festival 2017 at Chester University. The theme of the day was "positive representations of disabled people in employment".
I demonstrated that despite having a long term condition / disability that need not stop you from seeking employment. I shared my own experience of living day to day with a rare disease and how a good support network helps you live your life and remain independent. Just over a year ago, I used my disability in a positive way to start my own business as a motivational speaker and disability coach. I believe that everyone has potential.
I talked about the importance of organisations having a diverse workforce and that everyone has skills and potential. To not consider employing somebody with a long term medical condition or disability could mean that you are missing out. Disabled people have strengths, are loyal, reliable, and enrich your workforce.
I also ran 2 workshops where delegates had the opportunity to try using aids, such as a wheelchair, walking frame and walking sticks. We discussed their experiences. We also talked about real life examples of companies and services that get it right, where going that extra mile can really make a difference to both customer and employee satisfaction.
Great to network and promote inclusion and diversity.
A.Duckworth, Enabling Ability, March 2017
Delegate feedback- "Inspiring","Motivational", "Thank you for sharing your story" "Outstanding" "Personalises our jobs"
On Monday 6th March I had the privilege of speaking to employees at Amicus Therapeutics in Gerrard's Cross, at their Pompe in Focus Lunch and Learn.
I gave a patient's perspective of what it is like to live with Pompe disease, a rare progressive neuromuscular disease.
I talked about events leading up to my diagnosis, the diagnosis itself and how I manage to continue to enjoy and be a part of family life. I talked about coming to terms with using night ventilation when our children were very young. I also explained how I was thrown a lifeline in 2006 when I was offered Enzyme Replacement Therapy and how this has had a positive effect on my lung function readings and on my daily life. I demonstrated how important it was that pharmaceutical companies provide therapies for those with rare diseases and what a positive contribution it makes.
I demonstrated that living with a long term medical condition or disability need not hold you back and in fact it can have a positive outcome. I talked about how I had started my own business and that I am passionate about helping others particularly those with a medical condition / disability achieve their potential.
It was a privilege to be asked to be part of their event.
I was delighted to be a stallholder at the Disability Confident at West Cheshire College yesterday. This was held in conjunction with the Dept of Work and Pensions and Cheshire Centre for Independent Living.
It was great to network with local companies and discuss the advantages of employing people who may have a disability / long term medical condition.
The important thing to remember is that the skills and attributes that people with disabilities bring to your organisation make a positive impact on your business. See the potential, don't miss out!
I hope to be involved with disability awareness training with many of the attendees to ensure that businesses and organisations are inclusive and fair to all. It's all about breaking down barriers and making adjustments to accommodate a diverse workforce.
If you are reading this as an employer, and feel that your organisation could benefit from disability awareness training, please get in touch. I would be pleased to work with you.
Networking and training and making life better for everyone.
Delegate feedback, Courageous, inspiring, optimistic, huge thanks for sharing your story.
On Wednesday 8th February I was delighted to speak to international delegates from Sanofi Genzyme Pharmaceutical Company at their conference in Mainz, Germany.
I shared my experience of being diagnosed with Pompe disease, a rare neuromuscular metabolic disease. I talked about events leading up to the diagnosis, the diagnosis itself and how, despite this progressive disease, I manage to lead a happy, fulfilled and independent life.
I explained that the biggest shock of all was in 2003, when I was told that I needed to use night ventilation as my carbon dioxide levels were becoming dangerously high. This was a huge adjustment for our family.
In 2006, I was thrown a lifeline, and was one of the first patients in the North West at Salford Royal Hospital, Manchester to receive ERT (Enzyme Replacement Therapy). I explained how my experience of having ERT was a positive one and that although my mobility was still slowly deteriorating, my lung function tests showed a stabilisation over the last five years. As I explained, if your legs don't work, you can use aids but if you can't breathe you're stuffed!
I demonstrated that good support networks are vital to my quality of life and include, family, PA's (my special friends), hospitals, The Neuromuscular Centre in Cheshire, AGSD (The Association of Glycogen Storage Diseases) and Dial West Cheshire Shopmobility . Exercise plays a big part too.
I explained how having such a disease need not define you. For the past ten years ERT has given me a new lease of life. I enjoy time with my family and friends and recently started my own business.
Finally, I explained that the Pompe Community want to carry on receiving ERT and that their work is essential in stabilising our condition and giving us a good quality of life. We await the next generation of treatment.
A privilege and a pleasure.
A. Duckworth February, 2017
CHESTER wins European Access City Award 2017
As a regular user of DIAL West Cheshire Shopmobility's Service, I was privileged to be interviewed by Andrew Fletcher, from Radio 4, for the programme You and Yours.
Quite simply, without the Shop-mobility service, the access points to the City Walls, ramps and dropped kerbs, I would be unable to get around the City.
To hear the full interview,
Start of interview ..24min 35 seconds. Lasts 7 minutes.
Broadcast 6th January 2017
In October, I was honoured to speak at The AGSD's (Association of Glycogen Storage Diseases) two day conference in Tortworth Court Hotel, Gloucestershire. Celebrating 30 years of this wonderful charity, and having been a member since I was diagnosed with my disease in 2002, it was a fantastic opportunity to meet others (some old faces and lots of new ones too) with the same condition, and hear from professionals too.
I spoke about being diagnosed with my condition and how it has impacted on my life and that of my family. I explained how AGSD has been a source of support and enabled me to network with others in a similar situation. I talked about exercise, physiotherapy and hydrotherapy and the positive outcomes this can have both physically and emotionally on your well being. Although I now need equipment and support to help me lead the life I want, I demonstrated that it can be done. I explained how I had used my own experience to start my own business as an International Motivational Speaker and Disability Coach.
A great weekend with a combination of talks, patient experiences, professional viewpoints, good food and good company.
Happy 30th Birthday AGSD and here's to the next 30 years>
Andrea, Enabling Ability
On 23rd September, I was delighted to speak at DIAL West Cheshire's 30th birthday celebration at Chester racecourse.
An audience of dignitaries, Trustees, service users, volunteers celebrated this wonderful occasion.
I talked about my personal journey and how DIAL and DIAL West Cheshire Shopmobiilty have played a huge part in giving me continued independence and freedom. I explained how vital this service is to residents and visitors to Chester who need aids and equipment to help them get around. Being a member of The DIAL Disability Awareness Team (DATT) has helped change organisations attitudes towards disability.
I explained how everyone has ability whether they have a disability, long term medical condition and / or are elderly.
DIAL and DIAL West Cheshire Shopmobility are vital services. They are a lifeline, encouraging independence and freedom and hugely reducing isolation.
DIAL West Cheshire and DIAL West Cheshire Shop mobility must continue for the next 30 years.
HAPPY 30th BIRTHDAY DIAL.
Andrea Duckworth, Enabling Ability
Live Local Work Local event in Ellesmere Port today. Great opportunity to network. Plus Dane, 1st Enable, Total People, Cheshire West and Chester Council and many others.
Recently spoke at the Cheshire Centre for Independent Living (CCIL) Employer Training event in Chester. We heard about how to be a good employer of PA's (personal assistants), the legislation we need to be aware of and there was an update on pensions.
I spoke about why our family employs PA's, the qualities we looked for in our PA's and the difference it has made to our lives. There is no doubt that for me, having a good team of PA's helps me live the life I want to, gives me independence and freedom and a good quality of life.
..Thanks for sharing your story. Inspiring."
Andrea Duckworth is a motivational speaker & coach with 20 years experience in the field of disability. Andrea is living with the progressive disease Pompe (Acid Maltase Deficiency) more