Privileged to have spoken at the #Pompe Preceptorship in Manchester about living with #Pompe disease. Organised by The Mark Holland Metabolic Team at Salford Royal, to educate professionals worldwide on early #pompe symptoms #pompe diagnosis, managing day to day, ventilation, cough assist machine, walking frame, mobility scooter, electric bed, electric chair. Family support, medical support #enzyme replacement therapy. There is life after a #pompe disease diagnosis.
These photos ...stuck in the lift at the hotel, thankfully after my speech. It took several staff members and the use of a saw to free me! #disability #sense of humour #accessibility?
Andrea Duckworth is a motivational speaker & coach with over 20 years experience in the field of disability. Andrea is living with the progressive disease Pompe (Acid Maltase Deficiency) more